NHS Greater Glasgow and Clyde Diabetes

Preview of JSON file

{
  "linkage": {
    "associatedMedia": "https://www.nhsggc.scot/downloads/west-of-scotland-safe-haven-user-guide/"
  },
  "summary": {
    "title": "NHS Greater Glasgow and Clyde Diabetes",
    "abstract": "Diabetes registry information for patients registered to NHS Greater Glasgow and Clyde Health Board.",
    "keywords": "SCOTLAND;,;NHS Greater Glasgow & Clyde;,;Glasgow;,;Diabetes",
    "publisher": {
      "name": "West of Scotland Safe Haven",
      "gatewayId": "d8199a09-59da-44a6-97ce-0b9f9431d769"
    },
    "inPipeline": "Not available",
    "shortTitle": "NHS Greater Glasgow and Clyde Diabetes",
    "datasetType": "Health and disease",
    "description": "Diabetes registry information for patients registered to NHS Greater Glasgow and Clyde health board. Data is derived from SCI-Diabetes, an integrated shared electronic patient record to support treatment of NHS Scotland patients with Diabetes. SCI Diabetes pulls data from Primary and Secondary Care Clinicians, and specialist services like Paediatrics, Podiatry, Diabetes Specialist Nursing and Dietetics. See https://www.sci-diabetes.scot.nhs.uk/",
    "contactPoint": "safehaven@ggc.scot.nhs.uk",
    "datasetSubType": "Not applicable",
    "populationSize": -1
  },
  "coverage": {
    "pathway": "Data for patients diagnosed with diabetes, integrated from multiple care settings.",
    "spatial": "United Kingdom;,;United Kingdom,Scotland;,;United Kingdom,Scotland,Glasgow City",
    "followUp": "Unknown",
    "typicalAgeRange": "0-150"
  },
  "required": {
    "issued": "2024-10-08T11:32:29.365815Z",
    "version": "1.0.0",
    "modified": "2024-10-08T11:32:29.36583Z",
    "gatewayId": "844",
    "revisions": [
      {
        "url": "https://web.prod.hdruk.cloud//dataset/844?version=1.0.0",
        "version": "1.0.0"
      }
    ],
    "gatewayPid": "b8395b21-538a-4035-aa97-d4604c7d8db9"
  },
  "provenance": {
    "origin": {
      "source": "Other",
      "imageContrast": "Not stated",
      "collectionSituation": "Primary care - Clinic;,;Community;,;Secondary care - Outpatients;,;Clinic"
    },
    "temporal": {
      "endDate": "2024-01-01",
      "timeLag": "1-2 weeks",
      "startDate": "1999-01-01",
      "accrualPeriodicity": "Weekly",
      "distributionReleaseDate": "2024-01-01"
    }
  },
  "observations": [
    {
      "observedNode": "Events",
      "measuredValue": 130000,
      "observationDate": "2024-02-01",
      "measuredProperty": "COUNT",
      "disambiguatingDescription": "Diabetes"
    }
  ],
  "accessibility": {
    "usage": {
      "resourceCreator": {
        "name": "Local NHS boards"
      },
      "dataUseLimitation": "General research use",
      "dataUseRequirement": "Project-specific restrictions"
    },
    "access": {
      "accessRights": "https://www.nhsggc.scot/hospitals-services/services-a-to-z/west-of-scotland-safe-haven/",
      "jurisdiction": "GB-SCT",
      "accessService": "The West of Scotland Safe Haven is part of the regional Safe Haven network in Scotland. We operate as a REC-approved research database (IRAS 321198) within NHS Greater Glasgow and Clyde, and offer a delegated ethics route for data-only studies, cohort builds and linkage to a variety of deep, multi-modal clinical NHS data types - including structured, free text, and imaging - with hosting of deidentified research-ready datasets in an ISO-accredited Secure Data Environment. For more information, please email safehaven@ggc.scot.nhs.uk to discuss requirements.",
      "dataProcessor": "NHS Greater Glasgow and Clyde",
      "dataController": "NHS Greater Glasgow and Clyde",
      "deliveryLeadTime": "2-4 weeks",
      "accessRequestCost": "Operate on a cost recovery basis, quotations available on request"
    },
    "formatAndStandards": {
      "formats": "CSV",
      "languages": "en",
      "vocabularyEncodingSchemes": "NHS SCOTLAND NATIONAL CODES"
    }
  },
  "structuralMetadata": [
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "safehavenid",
          "dataType": "int",
          "sensitive": false,
          "description": "Unique de-idenitified value created by the Safe Haven on a project to project basis"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "DATAITEM",
          "dataType": "varchar",
          "sensitive": false,
          "description": "Descriptive field for 'DATAITEM_ID'"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "DATAITEM_ID",
          "dataType": "varchar",
          "sensitive": false,
          "description": "A coded value for the type of diabetes parameter recorded by the source system"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "DATE",
          "dataType": "date",
          "sensitive": false,
          "description": "Date the data entity was recorded by the source system"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "ITEMVALUECODE",
          "dataType": "varchar",
          "sensitive": false,
          "description": "A coded value entry for the 'DATAITEM'"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "VALUEDESCRIPTION",
          "dataType": "varchar",
          "sensitive": false,
          "description": "Descriptive field for the 'ITEMVALUECODE'"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "DATASOURCEID",
          "dataType": "varchar",
          "sensitive": false,
          "description": "A coded value for the source health record system that the data entity was recorded from"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "DATASOURCENAME",
          "dataType": "varchar",
          "sensitive": false,
          "description": "Descriptive field for 'DATASOURCEID'"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "MAINRECORD",
          "dataType": "int",
          "sensitive": false,
          "description": "System code, provenance unknown"
        }
      ],
      "description": "Diabetes registry data"
    },
    {
      "name": "Diabetes",
      "columns": [
        {
          "name": "TRANSACTIONID",
          "dataType": "varchar",
          "sensitive": false,
          "description": "Unique identifier for the data load operation to the SCI Diabetes registry"
        }
      ],
      "description": "Diabetes registry data"
    }
  ]
}