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DataLoch Respiratory

Summary

Abstract

A database of South-East Scotland residents diagnosed with Asthma, Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease, Cystic Fibrosis or Wheeze containing research-ready data on demographics, diagnoses, events, measurements and medications.

Keywords

BREATHE COPD LUNG DISEASE ILD ASTHMA CYSTIC FIBROSIS Wheeze

Publisher

  • Name
    DataLoch
  • Logo

    Not available

  • Description
    Not available
  • Contact point
    Not available

Documentation

Description

DataLoch has collaborated with the BREATHE Health Data Research Hub and others at Health Data Research UK (HDRUK) to create a respiratory-related database of South-East Scotland residents (NHS Lothian) with chronic respiratory conditions, specifically Asthma, Chronic Obstructive Pulmonary Disease (COPD) and Interstitial Lung Disease (ILD). DataLoch"s respiratory registry is one of three related registries alongside others in England (Clinical Practice Research Datalink (CPRD) Aurum) and Wales (Secure Anonymised Information Linkage Databank (SAIL)). In addition to these conditions, the DataLoch respiratory registry includes Cystic Fibrosis (CF) and Wheeze (a common respiratory symptom). This database of respiratory patients also contains research-ready data related to these patients" demographics, diagnoses, condition events, measurements and medications, expertly curated with clinical input and as much harmonisation as possible across the different UK registries using methodology in a soon-to-be-published paper. The data is presented in tables where each dataset has had its data chosen and derived from multiple sources and ran against algorithms to remove the noise from the raw data.

Coverage

Spatial

  • Spatial coverage

    United Kingdom, United Kingdom, Scotland, United Kingdom, Scotland, City of Edinburgh, United Kingdom, Scotland, Midlothian, United Kingdom, Scotland, East Lothian, United Kingdom, Scotland, West Lothian

  • Geographic levels
    Not available

Temporal

  • Start date
    01/01/2004
  • End date
    Not available
  • Frequency
    Other
  • Distribution release date
    Not available

Provenance

  • Purpose
    Disease registry
  • Source
    Epr
  • Collection situation
    Primary care - Clinic, Secondary care - In-patients, Secondary care - Outpatients

Access and governance

  • Conditions of access
    Project-specific restrictions

Requesting access to this data

This is a secure dataset that can only be accessed by researchers from approved organisations.

Find out how to apply to access this dataset

Usage

  • Conditions of use
    Ethics approval required, Disclosure control, Project-specific restrictions
  • Resource creator
    DataLoch
  • Is referenced by
    Not available

Access

Format and standards

  • Language
    English
  • Format
    Text/tsv

Enrichment and linkage

  • Related datasets
    • Not available
  • Linkage opportunity
    Not available
  • Tools
    • Not available

Synthetic data

Synthetic data is not yet available for this dataset. 

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