Skip to content
Contact us Researcher login

Brain Health - Scottish Cancer Registry (SMR06)

Summary

Abstract

Public Health Scotland is responsible for the collection of information on Scottish residents when they are diagnosed with malignant (and some benign) tumours. This is a subset of data for the Brain Health Data Pilot (BHDP)

Keywords

Cancer BHDP Brain Health HDRUK

Publisher

  • Identifier
    7
  • Name
    Public Health Scotland
  • Logo
  • Description
    Public Health Scotland is an NHS Board. We are uniquely sponsored by the Scottish Government and the Convention of Scottish Local Authorities (COSLA) on behalf of local government.
  • Contact point

Documentation

Description

The Brain Health Data Pilot (BHDP) project aims to be a shared database (like a library) of information for scientists studying brain health, especially for diseases like dementia, which affects about 900,000 people in the UK. Its main feature is a huge collection of brain images linked to routinely collected health records, both from NHS Scotland, which will help scientists learn more about dementia and other brain diseases. What is special about this database is that it will get better over time – as scientists use it and add their discoveries, it becomes more valuable. This is a subset of the Scottish Cancer Registry (SMR06) dataset for use in the Brain Health Data Pilot (BHDP) project. The registry began in 1958 collecting personal, demographic and diagnosis information (such as site, histology, behaviour, histological confirmation and hospital of diagnosis) from cancer patients. In 1997, a new electronic cancer recording system was launched and at this point the registry was extended to include extra information on tumour stage (for breast, cervical and colorectal cancer), tumour grade and treatment information. A wide variety of geographical data is also included in the dataset including Scottish Index of Multiple Deprivation and Carstairs measures, census output area, NHS Board, Electoral Ward and Parliamentary constituency.

Coverage

Spatial

  • Spatial coverage

    United Kingdom, Scotland

  • Geographic levels
    Not available

Temporal

  • Start date
    Not available
  • End date
    Not available
  • Frequency
    Not available
  • Distribution release date
    17/06/2024

Provenance

  • Purpose
    Not available
  • Source
    Not available
  • Collection situation
    Not available

Access and governance

  • Conditions of access
    Not available

Requesting access to this data

This is a secure dataset that can only be accessed by researchers from approved organisations.

Find out how to apply to access this dataset

Usage

  • Conditions of use
    Not available
  • Resource creator
    Not available
  • Is referenced by
    Not available

Access

  • Access rights
    Not available
  • Access service
    Not available
  • Jurisdiction
    Not available
  • Data controller
    Not available
  • Data processor
    Not available

Format and standards

  • Language
    Not available
  • Format
    Not available

Enrichment and linkage

  • Related datasets
    • Not available
  • Linkage opportunity
    Not available
  • Tools
    • Not available

Synthetic data

Synthetic data is not yet available for this dataset. 

Data Dictionary

SCOTTISH INCIDENCE DATE

Scottish Incidence date is the date that the cancer in question becomes formally known t...

SIDE (LATERALITY)

This indicates the side or laterality of origin (i.e. left or right) in the case of pair...

TUMOUR SITE €“ ICDO(2) / ICDO(3) CODE

ICDO(2) - International Classification of Diseases for Oncology (2nd revision). Similar ...

TUMOUR TYPE - ICDO CODE

ICDO - International Classification of Diseases for Oncology. Tumour type indicates the ...

TUMOUR TYPE - ICDO(2) CODE

ICDO(2) - International Classification of Diseases for Oncology (2nd revision). Tumour t...

TUMOUR TYPE - ICDO(3) CODE

ICDO(3) - International Classification of Diseases for Oncology (3rd revision). Tumour t...

GRADE CLASSIFICATION USED

Indicates the classification system used for grading tumour. Options: Code Descript...

GRADE OR CELL TYPE

Grade or cell type indicates the degree of differentiation of malignant tumours or the T...

MOST VALID BASIS OF DIAGNOSIS

Most Valid Basis of diagnosis indicates the method judged to have best provided or valid...

HISTOLOGICAL VERIFICATION

Histological Verification is microscopic confirmation of the histological or cytological...

Variable description

Data type
Back to the top